August 31, 2017 Bend, Oregon

"Teton Elk Skirmish" Acrylic on Canvas 18" x 24"
“Teton Elk Skirmish” Acrylic on Canvas 18″ x 24″

Sitting in the Smoke in Bend

Smoke from the fires around Bend have finally made the air a little nasty here in Bend. Daytime temperatures remain stubbornly in the 90’s week after week,  supposed to hit triple digits ( again with smoke ) this weekend, though thankfully temps do tend to drop to comfortable levels at night.

I continue to pass the time trying to figure how to paint with acrylics, as you can see from the image above. Still frustrating for me, I repainted the foreground in this painting about six times until finally settling for what you see.

Myeloma Update

Yesterday I had the final week of round four of my chemo treatments. Fortunately, still no nasty side effects to all these drugs and blood tests continue to show positive results. My trip last week to Portland’s Oregon Health and Science University Hospital for my transplant consult was a bit of a disappointment.

Traffic and access to the facility was a nightmare as I had been warned and the aged facility did nothing to inspire confidence. The myeloma specialist I had been assigned was young and had only been at the hospital two months, also doing little to build my confidence that this was the right place to be.  I also spoke with the nurse coordinating the transplant procedures.

However, although it appears I would be eligible for the transplant despite my age, it turns out I probably will not be able to be admitted for the procedure because of my lack of a ” caregiver ” to assist with the post procedure recovery period. The transplant leaves one in a very diminished, vulnerable physical   state, and after the procedure the patient stays in the hospital for the initial two weeks, then is released as long as they can stay close by the hospital and have a 24/7 “caregiver” to stay with them for another two to three week period until the patient is recovered and strong enough to take care of themselves. This person provides the recovering patient with transportation to and from appointments, does shopping and cooking as well as household chores and is on hand to contact the doctors if anything goes wrong during those first couple of weeks out of the hospital.

This “caregiver” is normally one’s significant other, not a professional, and my lack of such a person makes me ineligible for the procedure. Since I can travel and could have the transplant done anywhere, I checked out the “caregiver” requirements of other facilities and found that it appears to be a universal requirement. So far I have not been able to find any paid professional caregivers for hire and, even if I did, probably could not afford it since insurance doesn’t cover this type of expense. It appears my best opportunity for long term survival is probably going to go by the boards.

As it is, my oncologist is still kind of up in the air as to whether I should have a transplant or should just go on a maintenance drug regimen since I have responded so well to the chemo treatments to this point. He is consulting with a couple of myeloma specialists in Seattle to come up with a possible alternate program for me that would not involve the transplant procedure. Again, I have to just wait and see. I am now scheduled for two more rounds of chemo, moving my move out of Bend date to early November.

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August 18, 2017 Bend, Oregon

My Backyard or the View From My Door
My Backyard or the View From My Door

Heading to Portland and Hospital Wildlife

Just a quick post to let you know I’m still around.

Today I make the 175 mile trip to Portland for my first visit with the myeloma specialists at the Oregon Health and Science University Knight Cancer Institute Center for Hematological Malignancies Clinic. That’s a mouthful. Yesterday I started my fourth round of chemo here in Bend and my oncologist figures that with the continued good results that perhaps the process can be speeded up a bit and so the referral to OHSU and the specialists to see where, and how quickly, to go from here.

Blood work now shows that my kidney function, that was dangerously close to needing dialysis in May, has now returned to completely normal function and most other indicators show me nearing remission. Of course, that is great news, but the worst part of this, mentally, is knowing that no matter how great this rapid positive response has been, in the back, make that the front, of my mind, I know that this disease always makes a return. Quality of treatment can make that wait for the return a bit longer, but this thing always comes back. Knowing that both of my parents survived into their nineties, and that I have never been sick in my adult life, I always assumed I had another 15 or 20 good years left. Hard to adjust to hoping to survive for five or hopefully a little more years, and that only made possible with continued, and very expensive treatment and drugs. This for a person that has never taken any kind of drugs or medicine , ever.

All right, enough for the kind of post I said I didn’t ever want to write.

Hospital Wildlife

Really not much happening for me here in Bend. The hot 90’s weather has continued on unabated and some days it does get a little smoky from forest fires in the region, but not too bad. And the temps do always drop to 60 or less every night plus the humidity must be very low, because the heat just doesn’t seem that unbearable. not like down south, or even back in New Hampshire when it reached the 90’s there.

Had an interesting experience here on the hospital loop road’s camping spot Tuesday morning at 5:30 AM when I opened the motorhome door and let Sam out to go. I am now in a space with no other rigs on my passenger side, just an expanse of lush mowed grass ( that’s the reason for the strange opening photo above ), and as Sam hopped down the steps, I saw a young Mulie buck lift his head from his early morning grazing and stare at this possible nearby threat. He was no more than twenty feet from where I stood in the doorway and must have figured that ten pound Sam wasn’t anything to be terribly concerned with ( since Sam never even realized he was there ) and that I also wasn’t going to be bothering him, so he simply stood his ground and resumed grazing. Adjusting my eyes to the darkness, I then noticed that he was not alone, two other young bucks were also nibbling grass or clover within 50 or 60 feet of door.

Made some coffee and sat in my recliner gazing out the window in this same direction, as I do every morning, and I noticed yet more deer grazing through the same area, including one very impressive older buck with an antler spread of two feet or more that rose at least eighteen inches or more above his head. Unfortunately too dark to photograph or count points but definitely one of the most impressive Mule Deer bucks I have encountered at such close range. In all, this in-city bachelor herd numbered seven or eight animals and lingered around for close to half an hour under the street lamps before heading across the road, not into the surrounding apartment complexes, but into the hospital’s expansive parking lots and towards the main hospital buildings. Amazing what goes on in the early morning hours, even here in the city.

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