October 26, 2018 Bend, Oregon

Mountain Above Bend
Mountain Above Bend

Medical Update

Sorry for the long delay in posting anything on this blog, but as some of you have probably guessed, I had a serious relapse of my Multiple Myeloma. As I have stated before, I did not want this travel/photography blog to become nothing more than a medical update blog, so since I am not traveling and have been confined to Bend for two months now, there has been nothing to blog about, other than health issues.

In late October, while I was staying at South Beach CG on the Olympic Peninsula, I began experiencing extreme fatigue and felt there was something seriously wrong. Since I figured I could make it the day’s long trip down to Bend and the oncologist that saved me a little more than a year prior, I packed up and headed south. I made it to Bend and drove up to a snow park near Mount Bachelor to camp. The following day I drove down to Bend and checked into the Emergency Room at St. Charles Hospital. I remained in the hospital for two weeks, including a three day stay in ICU where I since been told I came close to buying the farm, due to an infection that my nonexistent white blood cells could not fight off. My Multiple Myeloma had returned with a vengence.

My oncologist got me started on a new chemo regimen while I was hospitalized and that has now continued for the last six weeks on an outpatient basis. As was the case last year, I have been able to stay in the 11 space hospital camping area while I go through this recovery process again. This full hookup camping area on the hospital campus is once again, a true life saver.

Today my oncologist told me that I could probably resume traveling sometime around the end of November, and he could arrange for me to receive the last couple of months of chemo infusions at a hospital in a warmer climate. It does appear that I probably will get the cancer back into remission as the last few weeks’ blood numbers look very encouraging. So maybe this blog will resume in it’s former form by the end on November. Here’s hoping!

The Kindness of Strangers

As I mentioned above, when I arrived in Bend, I parked my motorhome in a Snow Park up near Mount Bachelor, about 17 miles outside of Bend. The next day when I drove down to the hospital, I locked Pearl in the bathroom with her bed, toys, water, and food, not knowing if I would have to be admitted to the hospital or not ( though I had a feeling I would be ).

My first concern, when the Emergency Room doctor quickly conveyed how perilous my condition was and checked me into the hospital, was how to get Pearl rescued. The solution turned out to be a Forest Ranger the hospital called who came to my bedside, took my info and motorhome keys, and drove up to the Snow Park and picked up Pearl and then delivered her to the Humane Society of Central Oregon in Bend where she could be cared for until/if  I was released from the hospital. On top of that, on his own, he went to the shelter to check on her two days later and relayed her status to me in the hospital, something he certainly did not have to do, but that was greatly appreciated.

Since the Myeloma had clogged my kidneys once again, I had to undergo treatments in the dialysis unit where they ran my blood through a centrifuge of some kind to filter out the Light Chains, though they did manage to keep me from requiring dialysis thankfully. This took several sessions over five or six days and lasted several hours each day. I can not say enough about how wonderful the staff of this department was at a very trying time for me.

The department head ( Mary) was very concerned about the welfare of Pearl ( maybe a little bit about me also ) and her confinement at the Humane Society, and insisted that she would go pick her up and keep her at her  home until I could take her back … and she did just that, with Pearl ending up staying with her for three weeks. And I might note that Pearl was reluctant to return to life in the motorhome after being spoiled with a fenced yard, being able to sleep in a real bed, new toys, and more pampering than she she ever gets from me. But she has readjusted now to her her prior dull life wth me, though she really looks forward to having Mary come take her for a walk every week.

The Dialysis Unit nurses and doctor were also concerned about my motorhome sitting unattended up in the Snow Park while I was confined to the hospital and asked if I needed someone to go up and get it and drive it down to the hospital and set it up in the hospital camping area. Talk about “above and beyond the call of duty”. Sure enough, two of the male nurses in the unit took my keys, drove to the Snow Park, prepped the motorhome to travel ( raise the jacks, stow the TV and lower the satellite dish, etc. ), and drove the motorhome back to the hospital, backed it into a space and hooked up the utilities for me so that I had a place to go when I got released from the hospital. I can not say enough about these kind folks!

If it weren’t for the freezing temperatures and snow, I would elect to stay here in Bend to complete my treatment, but living in the RV, I do need to get to a warmer climate before the snow does start to fall. I’ll resume some blog posts when I hit the road!